RDNZ research projects

Rare Disorders NZ often collaborates with researchers on research projects of benefit to the rare disorder community in Aotearoa New Zealand.

View current projects we are involved in below.

Rare Disorders Research Network

In collaboration with Dr Tara Officer and Adjunct Professor Karen McBride-Henry from Victoria University Wellington we support New Zealand's only Rare Disorders Research Network.

Read more here.


person looking out window

Impact of rare disorders in Aotearoa New Zealand

Research led by Lisa Underwood (COMPASS, University of Auckland) & Rare Disorders NZ

Learn more

genomics research

Extending whole genome analysis into healthcare

Research led by Prof Stephen Robertson, University of Otago, with support from Rare Disorders NZ

Learn more

Karen McBride-Henry, Dr Tara Officer and Chris Higgins

Invisible inequity: health care insights from people living with rare disorders

Research led by Prof Karen McBride-Henry RN PhD, Victoria University Wellington, in collaboration with Rare Disorders NZ

Learn more

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Rare News

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups. Our work is informed by the issues important to our collective, and we work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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