Research projects
Research projects with Rare Disorders NZ
Rare Disorders NZ often collaborates with researchers on research projects of benefit to the rare disorder community in Aotearoa New Zealand.
View current projects we are involved in below.
We also support a Rare Disorders Research Network in collaboration with Dr Tara Officer and Adjunct Professor Karen McBride-Henry from Victoria University Wellington. Read more here.
Impact of rare disorders in Aotearoa New Zealand
Research led by Lisa Underwood (COMPASS, University of Auckland) & Rare Disorders NZ
Extending whole genome analysis into healthcare
Research led by Prof Stephen Robertson, University of Otago, with support from Rare Disorders NZ
Invisible inequity: health care insights from people living with rare disorders
Research led by Prof Karen McBride-Henry RN PhD, Victoria University Wellington, in collaboration with Rare Disorders NZ
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