As part of the development of New Zealand’s first Rare Disorders Strategy, Rare Disorders NZ worked with Te Aka Whai Ora to engage with whānau Māori to ensure that the voices of Māori living with a rare disorder were reflected in the Rare Disorders Strategy.
The summary report from this engagement can be downloaded here.
16 Aug 2024
25 Jul 2024
22 Jul 2024
21 Jul 2024
19 Jul 2024
25 Jun 2024
18 Jun 2024
18 Jun 2024
Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups. Our work is informed by the issues important to our collective, and we work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.
