Create a lasting legacy with Rare Disorders NZ

Leaving a gift in your Will is a powerful way to ensure your values live on and the next generation are supported for years to come.

Your generosity won't affect your daily circumstances now, but will contribute to the future health and wellbeing of the 300,000 Kiwis with a rare condition.

Your gift will

  • Amplify our voice fighting for equitable healthcare and improved services for people living with rare disorders.
  • Expand the ways we can support people living with rare disorders and their whānau.
  • Strengthen our work with researchers, policy makers, politicians, health professionals and the general public to see lasting change.

How to leave a gift in your Will

Decide on the Type of Gift

  • Pecuniary Gift: A specific sum of money.
  • Residuary Gift: A percentage of your estate after other bequests and expenses have been paid.
  • Specific Gift: A particular item or asset, such as property or shares.

Include the Charity Details

Ensure you include our full name, address, and registered charity number in your will:

Rare Disorders NZ 

PO Box 7081, Newtown, Wellington 6242

Registered Charity Number: CC22512

Consult a solicitor

We recommend consulting with a solicitor to ensure your Will is legally valid and your wishes are clearly stated.

Inform us

If you decide to leave a gift to Rare Disorders NZ, please let us know. This allows us to thank you and keep you informed about our work.


Create your Will with Public Trust

Public Trust is offering a 20% discount on new basic, standard and comprehensive Wills online for the rare disorders community.

Contact us at enquiries@raredisorders.org.nz to request your discount code.


Together, we can create a brighter future for those living with rare disorders. Your support is the key to making this vision a reality.

If you would like to discuss leaving a gift to RDNZ or require further information, please email gemma@raredisorders.org.nz.

Rare News

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups. Our work is informed by the issues important to our collective, and we work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more