dad and daughter

Create a lasting legacy with Rare Disorders NZ

Leaving a gift in your will is a powerful way to ensure that your legacy continues to support the 300,000 Kiwis living with a rare disorder.

Your generosity will help us continue our work to provide connection and empower people living with a rare disorder for years to come.


Why leave a gift?

By including Rare Disorders NZ in your will, you are making a lasting impact on the lives of individuals and families affected by rare disorders.

Your gift will

  • Support our efforts to ensure equitable healthcare and improved wellbeing for people living with rare disorders.
  • Help us continue to provide a central place for patients, support groups, families, healthcare professionals and experts to connect.
  • Ensure the needs of people affected by rare disorders remain on the radar of politicians, policy makers, health professionals and the general public.

How to leave a gift in your will

Decide on the Type of Gift

  • Pecuniary Gift: A specific sum of money.
  • Residuary Gift: A percentage of your estate after other bequests and expenses have been paid.
  • Specific Gift: A particular item or asset, such as property or shares.

Include the Charity Details

Ensure you include our full name, address, and registered charity number in your will:

     Rare Disorders NZ 

     PO Box 7081, Newtown, Wellington 6242 

     Registered Charity Number: CC22512

Consult a solicitor

We recommend consulting with a solicitor to ensure your will is legally valid and your wishes are clearly stated.

Inform us

If you decide to leave a gift to Rare Disorders NZ, please let us know. This allows us to thank you and keep you informed about our work.


Together, we can create a brighter future for those living with rare disorders. Your support is the key to making this vision a reality.

If you would like to discuss leaving a gift to RDNZ or require further information, please email gemma@raredisorders.org.nz.

Rare News

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups. Our work is informed by the issues important to our collective, and we work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more