Leave a lasting legacy
Create a lasting legacy with Rare Disorders NZ
Create a lasting legacy with Rare Disorders NZ
Leaving a gift in your Will is a powerful way to ensure your values live on and the next generation are supported for years to come.
Your generosity won't affect your daily circumstances now, but will contribute to the future health and wellbeing of the 300,000 Kiwis with a rare condition.
Your gift will
- Amplify our voice fighting for equitable healthcare and improved services for people living with rare disorders.
- Expand the ways we can support people living with rare disorders and their whānau.
- Strengthen our work with researchers, policy makers, politicians, health professionals and the general public to see lasting change.


How to leave a gift in your Will
Decide on the Type of Gift
- Pecuniary Gift: A specific sum of money.
- Residuary Gift: A percentage of your estate after other bequests and expenses have been paid.
- Specific Gift: A particular item or asset, such as property or shares.
Include the Charity Details
Ensure you include our full name, address, and registered charity number in your will:
Rare Disorders NZ
PO Box 7081, Newtown, Wellington 6242
Registered Charity Number: CC22512
Consult a solicitor
We recommend consulting with a solicitor to ensure your Will is legally valid and your wishes are clearly stated.
Inform us
If you decide to leave a gift to Rare Disorders NZ, please let us know. This allows us to thank you and keep you informed about our work.
Create your Will with Public Trust
Public Trust is offering a 20% discount on new basic, standard and comprehensive Wills online for the rare disorders community.
Contact us at enquiries@raredisorders.org.nz to request your discount code.
Together, we can create a brighter future for those living with rare disorders. Your support is the key to making this vision a reality.
If you would like to discuss leaving a gift to RDNZ or require further information, please email gemma@raredisorders.org.nz.