Rare Disorders Month
Join us in celebrating our rare community
March is Rare Disorders Month
Every year on Rare Disease Day (the last day of February) we kick off a month-long campaign to raise awareness about rare disorders and to celebrate our rare community in Aotearoa. We do this by calling on Aotearoa to 'Glow up and Show up for Rare' to show support for the 300,000 Kiwis living with a rare disorder.
From buildings being lit up on Rare Disease Day, to schools, kura and workplaces having 'glow up' days during March to individuals showing their support through social media - there are so many ways to support the rare community.
You too can get involved to help bring rare disorders out of the darkness and into the light. See below for ideas and resources.
Shop Glow Up and Show Up merch here
Ways to get involved...
Run for Rare!
Make your participation in Round the Bays and other community sports events matter by fundraising for Rare Disorders NZ!
#GlowUpShowUp
#DoRightByRare
#RareDisordersMonth
Did you know...?
While many countries in the Northern Hemisphere consider February 'Rare Disease Month', February is a busy time for New Zealanders and the Government alike, as we settle back into business after summer. This is why we have chosen March to mark our Rare Disorders Month, kicking off on the last day of February - Rare Disease Day, to ensure rare is seen EVERYWHERE.
