Sign our petition
Join us in calling for urgent action to improve services for rare
In July 2024, the Ministry of Health released New Zealand's first Rare Disorders Strategy, outlining the Government's intentions to improve health outcomes for people living with a rare disorder.
While this was a huge milestone for the rare disorders community, there has been no action since to begin implementing the intentions in the Strategy. Without action, the Strategy is not worth the paper it is written on.
Rare Disorders NZ has launched a petition calling for Te Whatu Ora - Health NZ to urgently begin planning implementing the Rare Disorders Strategy.
SIGN THE
PETITION HERE
People living with a rare disorder have waited too long for the support and services they need for better health and wellbeing.
Chris Higgins, CE Rare Disorders NZ
