Churg Strauss New Zealand

Churg Strauss Syndrome; Eosinophilic Granulomatosis with Polyangiitis; EGPA

Facebook: EGPA/Churg Strauss New Zealand | Facebook

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Churg Strauss New Zealand

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Rare News

Rare Disorders NZ launches new podcast

Rare Disorders NZ Chair forced to become another medical refugee

RDNZ endorses letter to Minister of Health on patient safety

Calling all Kiwis with a rare health condition – your voice is needed

RDNZ urges Government to include Rare Disorders Strategy in Pae Ora legislation

RDNZ CE appointed to new Pharmac Consumer and Patient Working Group

Advancing rare disorders research connections

'Don't forget rare' - RDNZ writes to Minister Seymour

Our Collective