Get your workplace to #ShowUp for rare

We are reaching out to workplaces in Aotearoa to help us drive awareness and raise funds to advocate for the rare disorder community.

They needs your support to Glow up and Show up during this month.

Nau mai, haere mai. Together, let’s glow up and show up for rare disorders.

Ways to get involved

See below for a list of ways you can get involved in Rare Disorders Month. These activities can function as team building exercises, boost morale, contribute to CSR objectives, and provide opportunities for positive owned and earned media content.

If you would like to sponsor a larger scale event such as a colour run, we can provide you with signage, a media release template and social media support. Please email tilly@maiastudio.co or libbie@maiastudio.co.

By organising any of these activities, or taking part via social media, you’re giving hope to the rare disorder community within your team, client/customer base, and stakeholders – showing that they matter and they deserve equitable access to services and care.


colourful cupcakes

Morning tea

Organise a #GlowUp morning tea for your workplace as a simple way to raise money and awareness for Rare Disorders Month.

Learn more


Posters

A great way to raise awareness at your workplace is by putting posters up in communal areas.

Your colleagues can learn about rare disorders while they enjoy a cuppa!

Find posters here

newsletter

Newsletter

To spread awareness to your community, you could include information about Rare Disorders Month in your next internal or external newsletter or blog post.

You could incorporate quotes or stories from people in your workplace or your wider community who live with a rare disorder. Write your own, or use our newsletter template as a guide.

Download template


Social media

We would love it if you and your team members can like, comment and share our posts on Facebook, LinkedIn and Instagram throughout the month.

To spread awareness to your network, you can post about Rare Disorders Month on your social media accounts too. Feel free to use these social media tiles and captions or create your own. 

We’d also love to send you some of our temporary tattoos and see posts of you and those around you raising your hands to #GlowUpShowUp for rare.  Order tattoos by emailing RDNZadmin@raredisorders.org.nz.

Rare News

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups. Our work is informed by the issues important to our collective, and we work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more