Spread the word on social media

Help us reach every corner of the motu by sharing on social media about rare disorders during Rare Disorders Month.

Use your own images from your Rare Disorders Month events, or select from one of our pre-made tiles below. We also have a list of suggested captions to make posting a breeze.

Caption suggestions

It’s not rare to have a rare disorder. In Aotearoa, the rare community is over 300,000 strong. If you don’t live with a rare disorder yourself, you probably know someone who does.

March is Rare Disorders Month, a support period for the rare disorder community where Aotearoa is being called to Glow Up and Show Up for rare.

After two decades of advocacy, last year the rare community successfully Glowed Up and Showed Up – rallying the motu and influencing the Government to deliver NZ’s first Rare Disorders Strategy. Since we welcomed the Strategy, progress on its implementation has slowed. The rare community can’t wait for action any longer.

This Rare Disorders Month is a chance for [insert organisation name] to come together with other rare disorder communities. It’s time to celebrate our progress while calling for the Strategy to be implemented. Let’s light the way for rare.

We stand with other rare disorder communities and support groups in Aotearoa, and we’ll be getting involved in Rare Disorders Month by [insert activities].

Through raising money and maintaining visibility, together we can bring rare disorders out of the darkness, and into the light. Together we can show up and achieve impactful change.

For the public, this is your time to #GlowUp, #ShowUp to events, donate to the cause, and continue to be a voice that influences Government.

For Government and policymakers – you’ve gone where no New Zealand government has gone before, delivering a National Rare Disorders Strategy. It’s time to continue this legacy and implement the strategy.

For corporates and organisations, it’s about truly getting behind the cause. Not just for show.

To the rare community – let’s look at how far we’ve come. Let's keep up the momentum and continue to Glow Up and Show Up. It’s time to celebrate our progress while calling for the Strategy to be implemented.

Visit raredisorders.org.nz and follow @RareDisorders_NZ to see more on how to get involved.

We are proud of [insert support group name]’s involvement across Rare Disorders Month which has taken place throughout March.

For Rare Disorders Month, Aotearoa was called to Glow Up and Show Up for rare. Now is the time for bold action and swift implementation to ensure no one with a rare disorder is left behind. For 1 in 5 people with a rare disorder, it took over 10 years to get a diagnosis. This isn’t good enough.

This Rare Disorders Month is a chance to keep up the momentum and continue to Glow Up and Show Up. It’s time to celebrate our progress while calling for the Strategy to be implemented. Let’s light the way for rare.

Throughout March, we were able to raise awareness by [list activities and events] and fundraised [insert $ amount] for Rare Disorders NZ.

Check out this picture of [insert image details. E.g. our community’s #GlowUpShowUp, proudly wearing their Rare Disorders Month tattoos.]