For support groups
Support Group Guide
Glow up and Show up for Rare is all about shining a light on the urgent need for action to improve healthcare and wellbeing for people and their whānau living with a rare disorder and showing support for the rare disorder community.
Help us drive awareness and raise funds to continue to advocate for our collective needs.
Nau mai, haere mai. Together, we can bring rare disorders out of the darkness and into the light.
How can your group get involved?
See below for a list of ideas for your group to get involved in Rare Disorders Month, but don't let this list constrain you if you have another great way to #GlowUpShowUp this March!
Morning tea
Holding a morning tea is a great way to Glow Up and Show up for Rare Disorders. You could organise this on International Rare Disease Day - Feb 28, or sometime during Rare Disorders Month (March) that works for you.
Paint & Sip event
Holding a ‘Paint and Sip’ night is a great way to Glow Up and Show up for rare disorders. A Paint
and Sip event is a fun social gathering where people come together and get creative by each
painting their own version of the same picture.
Colour run
Organising a colour run during Rare Disorders Month is a great way to help your community Glow Up and Show Up for rare disorders. It’s also a fun outdoor activity before summer draws to a close. The Colour Run is inspired by the Hindu Holi Festival.
Media release template
Use this template to help grab some media attention for your group and the wider rare disorder community during Rare Disorders Month. If you need help building your media list to distribute your media release to, contact comms@raredisorders.org.nz.
Newsletter template
Keep your community in the loop about Rare Disorders Month and what your group is doing by using this newsletter template.
