What is a Rare Disorder?
Understanding what we mean by 'rare'
What is a rare disorder?
In Aotearoa New Zealand a disorder is considered rare when it affects fewer than or equal to 1 in 2,000 people.
An ultra-rare disorder is one that affects fewer than or equal to 1 in 50,000 persons.
Rare disorders include, but are not limited to, genetic disorders, cancers, infectious disorders, poisonings, immune-related disorders, idiopathic disorders, and undetermined conditions that are rare.
Rare Disorders NZ is here to help you find information about your rare disorder, to help you navigate health and social service support, and can connect you with a support group.
Struggling to get a diagnosis? We can offer advice on that too.
Facts & Figures
Source: National Organization for Rare Disorders (NORD); Global Genes
